October 23 - 29, 2023 | Everywhere

I represent families with rare, orphan diseases

These rare, orphan diseases have severe, often life-threatening consequences, and it is all too common for physicians, and staff at Emergency Rooms to have never heard of these diseases, let alone know how to appropriately treat them when in crisis.

Open Access is vital to this community of people who must educate themselves about their disease, because they will have to educate their physicians.

Open Access allows patients to print out current literature about their disease and take it in to their doctor when they see them.

Open Access can save lives and untold suffering.

Orphan Disease Network

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Comment by Teresa Scruton on October 15, 2012 at 4:55am: Thank you Shkumbim,

I hope to see you in chat.... you can also go to my website and see what is there, in the meantime.

Best,

Teresa

Comment by Shkumbim A Thaqi on October 15, 2012 at 4:32am: Dear Tereza. Nice to meet you through OP/ let me know please your time in chat/ i need some information about your orphan disease. I am MD Resident in internal Medicine/ Rheumatology
from Kosovo.
Best Regard;

Shkumbim